CB Mako - Inclusion

Arts Access Victoria presents The Museum of Us

Cubbie has late-diagnosis ASD, Hard-of-Hearing, while Christa has Down Syndrome, immunocompromised from long-term side effects of chemotherapy. This is their definition of INCLUSION.

About the work

Parent and child: Cubbie and Christa are both disabled.

Cubbie has late-diagnosis ASD, Hard-of-Hearing, while Christa has Down Syndrome, immunocompromised from long-term side effects of chemotherapy.

Art by Christa, words by Cubbie.

INFRASTRUCTURE

The letter ‘I’ is outlined in black against a white background, littered with texta lines and patches and dabs of lilac, burgundy, dull green and royal blue, turquoise and rich red

Include Disability in design, architectural and engineering principles; in designing a city, in civil engineering.

These schools of thought are long overdue for an overhaul, a paradigm shift. Accessibility should be included in the most fundamental of rules, in curriculum teaching.

Make housing accessible as the norm and not the exception. All means all.

Buildings with accessibility included before city engineers approve a design

NON-BINARY

The letter ’N’ is outlined in red against a white background, with a mass of irregular royal blue shapes coloured in texta behind and through the letter

Whether in ASD or Down Syndrome organisations, why is #DisabilitySoWhite?

And their queer representation is also mainstream white narrative. Where is the inclusion?

We want you to meet the Disabled QBIPOC Collective .

Listen and read to their inaugural performance at Future Echoes Festival (October 2019) , and their first collaborative writing for FCACWrites 2020 during #MelbourneLockdown.

CYCLING WITH THREE-WHEELED CARGO BIKES AND TRICYCLES

A square-edged letter ‘C’ is outlined in bright green against a white background, with squiggles and filled areas in royal blue texta

Do not assume that cycling is two wheels only. Christa has a modified accessibility tricycle and Cubbie has a three-wheeled #cargobike as their everyday transport.

Build a cycling lane that would fit large, wide, slow #cargobikes and tricycles. We slow cycle to get from point A to point B.

All means all. Build a safe and protected cycling infrastructure for all ages and abilities.

And build cycling infrastructure where we are visible and not riverside – where it floods – and not roundabout paths through parks where no one can see us. Also, #PaintIsNotInfrastructure.

LEAVE NO ONE BEHIND

The letter ‘U’ is outlined in black against a white background, with light violet and lime and cyan scribbles f lling out the space. Toward the opening of the u-shape, there is a filled irregular shape of grass-green and another in a light forest green

In a pandemic, include the Disabled, the immunocompromised, on the priority list.

Make sure there are provisions for food, meals and PPE. Make testing and vaccines available through home visits.

During bushfires, in disaster planning, include the Disabled.

Planning in an evacuation includes bringing our disability equipment with us; making sure that there is a place for the Disabled in an evacuation centre.

Check out Other Film Festival’s Two Degrees (2020) about climate change. #ClimateJustice is #DisabilityJustice.

UNSEGREGATED COMMUNITY

The letter ‘U’ is outlined in black against a white background, with light violet and lime and cyan scribbles f lling out the space. Toward the opening of the u-shape, there is a filled irregular shape of grass-green and another in a light forest green

Include the Disabled (moreso Disabled BIPOC [Black, Indigenous, People of Colour], QBIPOC) in the mainstream narrative.

Stop segregation. Let the State of Victoria show by example to the other states that Inclusion is possible, whether in the arts, in publishing, in speculative fiction, in job opportunities, internship or job training.

To BIPOC communities, Cubbie keeps on encountering able-bodied people of colour (POC) – who have power and privilege – who exclude, erase, and remove Disabled BIPOC with numerous ableist excuses.

SCHOOLS

The letter ’S’ is outlined in black against a white background, with thick cyan texta lines running around its inner shape, and circles and splashes of a duller light blue filling it out. There are also a couple of rounded shapes in indigo and burgundy

Make Auslan Sign Language a LOTE (Language-other-than-English) subject in primary school.

In a pandemic, while wearing a face mask outdoors, Auslan helped Christa and Cubbie communicate.

Retrain and retool ableist gatekeepers in government departments (attention Department of Education) and government agencies about Inclusion; PBS (positive behaviour system) be added into schools.

Make universities accessible. Make buildings, lecture halls available to wheelchair users.

Provide scholarships covering access costs, and extra assistance for the Disabled to be able to complete higher education.

 

INCLUDE CAPTIONS, AUSLAN INTERPRETER,AND AUDIO DESCRIPTION AS STANDARD TEMPLATES WHEN PROGRAMMING EVENTS

The letter ‘I’ is outlined in black against a white background, with dense blue texta lines f lling the majority of the frame. At the centre of the picture, there’s a rough crescent-shaped arrangement of filled in shapes in brown, red, light blue, grass- green and royal blue

In literary festivals, musical performances, in the arts, whether live or online, include accessibility as the norm, as part of the proposal, in the budget, in choosing venues: include captions, Auslan sign language, and audio description.

In podcasts, please include transcription as the norm. Enough with the argument of ‘It’s not part of our budget’ or ‘we’re not like the USA, with sponsors’. #InclusionMatters.

In choosing venues for events, make sure it is accessible.

Your excuses – ‘it wasn’t in our budget’ or ‘we didn’t know accessibility’ – are no longer valid.

Do your research. Adjust your planning. All means all.

ONLINE WORK AND LEARNING

This image is drawn almost entirely in magenta-coloured texta. A loose circular outline denotes the letter ‘O’ against a white background. Inside, medium-sized dots are f lled in over a scribble of lighter lines in the same colour. There are a couple of darker blotches of black and brown

Whether in a post-pandemic world or ‘COVID-normal’ life, continue to have online meetings, workshops, events available, running side-by-side with your live events.

To universities, and schools, be flexible: include the Disabled, with chronically ill, immunocompromised students to have onlineWEBEX option alongside face-to-face learning.

Requiring, forcing immunocompromised Disabled students to attend school every day in a pandemic year is very ableist.

When you have Zoom events, please include live captions.

For example, The Aspire Awards 2020 : despite the awards night being held online, there were no live captions.

NDIS

The letter ’N’ is outlined in solid violet against a white background. Behind it, hot pink texta lines loosely draw a hand shape.

Hire Disabled BIPOC as employees in the NDIA-approving committee, and as LACs – Local Area Coordinators.

Hiring able-bodied people who don’t know about Disability and keep on ‘able-splaining’/rejecting the smallest accessibility items is frustrating many Disabled families.

#ClimateJustice is #DisabilityJustice.We wrote about excluding poor, marginalised, migrant Disabled BIPOC who live in private rental properties.

Despite hiring specialised assessors for your required assessments, you still denied our request, even when NDIS funding was available.

NDIS’ double whammy of red tape and bureaucracy is straining Disabled BIPOC families.

We don’t need this in VICTORIA: ' After years of careful manoeuvring, the Coalition government is readying to make radical changes to the National Disability Insurance Scheme. The revised system will force new assessments and tighten eligibility'.

Audio version of text