About the work
Parent and child: Cubbie and Christa are both disabled.
Cubbie has late-diagnosis ASD, Hard-of-Hearing, while Christa has Down Syndrome, immunocompromised from long-term side effects of chemotherapy.
Art by Christa, words by Cubbie.
Include Disability in design, architectural and engineering principles; in designing a city, in civil engineering.
These schools of thought are long overdue for an overhaul, a paradigm shift. Accessibility should be included in the most fundamental of rules, in curriculum teaching.
Make housing accessible as the norm and not the exception. All means all.
Buildings with accessibility included before city engineers approve a design
Whether in ASD or Down Syndrome organisations, why is #DisabilitySoWhite?
And their queer representation is also mainstream white narrative. Where is the inclusion?
We want you to meet the Disabled QBIPOC Collective .
CYCLING WITH THREE-WHEELED CARGO BIKES AND TRICYCLES
Do not assume that cycling is two wheels only. Christa has a modified accessibility tricycle and Cubbie has a three-wheeled #cargobike as their everyday transport.
Build a cycling lane that would fit large, wide, slow #cargobikes and tricycles. We slow cycle to get from point A to point B.
All means all. Build a safe and protected cycling infrastructure for all ages and abilities.
And build cycling infrastructure where we are visible and not riverside – where it floods – and not roundabout paths through parks where no one can see us. Also, #PaintIsNotInfrastructure.
LEAVE NO ONE BEHIND
In a pandemic, include the Disabled, the immunocompromised, on the priority list.
Make sure there are provisions for food, meals and PPE. Make testing and vaccines available through home visits.
During bushfires, in disaster planning, include the Disabled.
Planning in an evacuation includes bringing our disability equipment with us; making sure that there is a place for the Disabled in an evacuation centre.
Check out Other Film Festival’s Two Degrees (2020) about climate change. #ClimateJustice is #DisabilityJustice.
Include the Disabled (moreso Disabled BIPOC [Black, Indigenous, People of Colour], QBIPOC) in the mainstream narrative.
Stop segregation. Let the State of Victoria show by example to the other states that Inclusion is possible, whether in the arts, in publishing, in speculative fiction, in job opportunities, internship or job training.
To BIPOC communities, Cubbie keeps on encountering able-bodied people of colour (POC) – who have power and privilege – who exclude, erase, and remove Disabled BIPOC with numerous ableist excuses.
Make Auslan Sign Language a LOTE (Language-other-than-English) subject in primary school.
In a pandemic, while wearing a face mask outdoors, Auslan helped Christa and Cubbie communicate.
Retrain and retool ableist gatekeepers in government departments (attention Department of Education) and government agencies about Inclusion; PBS (positive behaviour system) be added into schools.
Make universities accessible. Make buildings, lecture halls available to wheelchair users.
Provide scholarships covering access costs, and extra assistance for the Disabled to be able to complete higher education.
INCLUDE CAPTIONS, AUSLAN INTERPRETER,AND AUDIO DESCRIPTION AS STANDARD TEMPLATES WHEN PROGRAMMING EVENTS
In literary festivals, musical performances, in the arts, whether live or online, include accessibility as the norm, as part of the proposal, in the budget, in choosing venues: include captions, Auslan sign language, and audio description.
In podcasts, please include transcription as the norm. Enough with the argument of ‘It’s not part of our budget’ or ‘we’re not like the USA, with sponsors’. #InclusionMatters.
In choosing venues for events, make sure it is accessible.
Your excuses – ‘it wasn’t in our budget’ or ‘we didn’t know accessibility’ – are no longer valid.
Do your research. Adjust your planning. All means all.
ONLINE WORK AND LEARNING
Whether in a post-pandemic world or ‘COVID-normal’ life, continue to have online meetings, workshops, events available, running side-by-side with your live events.
To universities, and schools, be flexible: include the Disabled, with chronically ill, immunocompromised students to have onlineWEBEX option alongside face-to-face learning.
Requiring, forcing immunocompromised Disabled students to attend school every day in a pandemic year is very ableist.
When you have Zoom events, please include live captions.
For example, The Aspire Awards 2020 : despite the awards night being held online, there were no live captions.
Hire Disabled BIPOC as employees in the NDIA-approving committee, and as LACs – Local Area Coordinators.
Hiring able-bodied people who don’t know about Disability and keep on ‘able-splaining’/rejecting the smallest accessibility items is frustrating many Disabled families.
#ClimateJustice is #DisabilityJustice.We wrote about excluding poor, marginalised, migrant Disabled BIPOC who live in private rental properties.
Despite hiring specialised assessors for your required assessments, you still denied our request, even when NDIS funding was available.
NDIS’ double whammy of red tape and bureaucracy is straining Disabled BIPOC families.
We don’t need this in VICTORIA: ' After years of careful manoeuvring, the Coalition government is readying to make radical changes to the National Disability Insurance Scheme. The revised system will force new assessments and tighten eligibility'.